HBCD (Healthy Brain Child Development)
Overview
The HEALthy Brain and Child Development (HBCD) Study is study that will recruit and collect information from a large cohort of pregnant individuals and follow them and their children through early childhood. The study will collect information beginning at birth and continuing through early childhood. The study will collect various kinds of data including structural and functional brain imaging; anthropometrics; medical history; family history; biospecimens; and social, emotional, and cognitive development.
ICS' Role
WashU serves as one-half of the data coordinating center, along with University of Minnesota. ICS provides project management for the EHR pipeline. Additionally, Steve Austin, of WashU, has written template queries for EPIC sties. All the participating institutions in the study that use EPIC will be using these templates to extract EHR data at their respective sites in a "standardized" manner. ICS helps to support all other sites (Cerner, Athena, etc.) develop scripts specific EHR.
Tier 2 sites are the sites/sub-sites/institutions who have the capability to run extracts from their EHR. Tier 1 sites are those that will have to request the medical records and manually abstract the data into RedCap forms.
Contacts
Internal
| Name | Role |
|---|---|
| Nicole Venteris | PM |
| Steve Austin | Technical |
| Philip Payne | PI |
| Albert Lai | PI |
| Sherry Lassa-Claxton | Consulting |
External
| Name | Role | Contact Info |
|---|---|---|
| Christopher Smyser | PI (WashU Peds) | smyserc@wustl.edu |
| Tim Meyer | Technical (UMN) | meye0664@umn.edu |
| Steve Johnson | Technical (UMN) | joh06288@umn.edu |
| Stephanie Averill | PM (UCS Admin Core) | saverill@ucsd.edu |
| Christina Chambers | PI (UCS Admin Core) | chchambers@health.ucsd.edu |
| Sauren Ravencroft | Ripple technical (WU) | mwisdom@wustl.edu |
Project Management
Major Tasks & Initiatives
Important Dates & Notes
(As of October 2024)
- Optional June submission
- Required September submission
- EHR Pipeline Pilot March 2024 - March 2025
Important Deadlines
Deliverables
Standard Meetings
| Name | Occurrence | Frequency | Zoom Link | Attendees | Description |
|---|---|---|---|---|---|
| DCC Working Group | M 4 and 5 pm alternating | weekly | Zoom link | Nicole, Steve A., Sherry, Chris S, Albert, Philip, UMN | Meeting on day to day execution details and affairs |
| COI PI Only meetings | F 1 pm PT | weekly | Recordings | PIs Only | Big Picture and Vision activities |
Administrative Details
Tracking Time
Please ensure all work involving HBCD is categorized underneath the "HBCD" project in Tracking Time..
Digital Landmarks
Project Web Pages
- HEALthy Brain and Child Development (HBCD) Study
- HBCD NIH Website
- HBCD Admin Core Confluence Site
- HBCD Protocol
- HBCD NIH
- HBCD Admin Core AirTable
- HBCD Interoperability Verification - Old
- HBCD Lead Coordinators
Document Repositories
- WUSTL Document on Box
- HBCD EHR Pipelines Nicole's OneNote
- Nicole's HBCD EHR info google doc
- Sites/Subsites as of Nov 2024
InfoSec Report
n/a
Code Repositories
Technical Information
Guides, Tutorials, & References
Glossary / Acronyms
| Term | Definition |
|---|---|
| HBCD | Healthy Brain and Child Development |
| DCC | Data Coordinating Center |
| COI | Council of Investigators |
Images
